Introduced and coordinated by the ASSR, its intent is to define an organic and integrated model of assistance to the terminal patients, that guarantees a care continuity and supplies a concrete answer to clinical, psychological, social and cultural problems related to the final phase of life.

ADMINISTRATIVE RESPONSIBLE :     Dr. Elisa Minichiello

SCIENTIFIC RESPONSIBLE :     Prof. Vittorio Ventafridda

The project intends to create an organic and integrated model of assistance to the terminal patients, that guarantees a care continuity and supplies a concrete answer to clinical, psychological, social and cultural problems related to the final phase of life.

In particular, the project intends to detect an " assistance and clinical continuum " that follows the patient in all the places of cure, and that, from time to time, guarantees the necessary assistance in the various clinical phases of the disease. Thus, the hospital, the hospice and the domiciliary assistance will be considered as various aspects and moments of a sole concrete answer, necessary to face in a qualified and human manner the problems of both patients and their families. The convergent actions to the attainment of such objective are:

  • Determination of the levels of cure and assistance in the palliative care;

  • Determination of the necessity of programs of palliative care in relation to the various levels of care;

  • Identification of financing criteria for the hospice and for the domiciliary assistance;

  • Definition of an organic and integrated model of assistance to the terminal patients, that guarantees, in a perspective of therapeutic continuity, a tight link between hospital  assistance and domiciliary assistance;

  • Definition of an organic model that provides a  concrete answer to clinical, psychological, social and cultural problems of the final phase of life, through a global analysis of the needs of patients, families and personnel, detecting for the latter the most appropriate professional training standards.

The project foresees the constitution of an Operative Committee, made up of the Scientific Coordinator of the project and of the Scientific Responsible of the various Operative Units. The intention is to proceed by means of:

  • Review of the national and international literature, of the national and regional regulations and collection of information on the distribution of hospices and of domiciliary programs of palliative care in the various regions and comparison with the assistance needs;

  • Realization of a survey form necessary for the collection of information, so as to characterize, where present, services and structures of care in relation to structure, technology, personnel and organization,  but also taking into account the relational quality of the assistance and the professional training course of the personnel; survey information and data analyses;

  • Predisposition of the project final products that will highlight and clarify the organizational routes and the optimal characteristics that a system of quality palliative care must have, paying attention especially to all the various regional situations, so as to formulate guidelines applicable and useful beyond the local differences. Among the final products there will be:

  • The definition of organizational, managerial, technological and structural principles and requirements relative to the hospice and to the other levels of care, whose acquisition allows the promotion of assistance models oriented towards the improvement of the quality of the final phase of the patient’s life;

  • The definition of a protocol that delineates requirements, modalities and criteria for the support of the patient within the various palliative care supply systems;

  • The cost analysis and the hypothesis of financing for the various levels of care, in order to supply useful tools for the costs rationalization of this typology of assistance;

  • The detection of professional training courses for the personnel, both at a basic and at a specialized level, including the definition of communication models aiming at obtaining a qualified assistance and a stronger awareness of the completeness of the palliative care;

  • survey and analysis of the needs of the patients, families, personnel, through several techniques such as, interviews to experts in palliative care for the creation of a first database, containing data concerning the needs, telephone talks and systematic observation with the help of metric instruments carried out in the sample Palliative Care Operative Units and hospices.

  • Descriptive inventory of the organizational models for the supply of palliative care in the various Italian regions, from an analytic collection of regional regulations inherent the hospice system, and from the epidemiological survey of the assistance requirements for the carrying out of palliative care programs in the participating realities;

  • Survey form for the collection of information concerning  services and structures that supply palliative care in the regional realities, where present, allowing the comparison of the existing services in the various realities;

  • Database of the emergent needs of the terminal phase and detection of optimal professional training courses for the personnel who supply palliative care to terminal patients and to their families;

  • drawing up of a report on the formulation of an organizational model of assistance to the terminal patients that supplies all the elements useful to guarantee effectiveness and efficiency to the palliative care system, in an optic of integration of the subjects and of the assistance divisions involved. Furthermore, the optimal professional training courses for the personnel involved in this typology of assistance and the tools useful for the cost rationalization with the identification of the financing criteria will be detected.

1.    Calabria Region  

Legal responsible:              Dr. Giovanni Filocamo

Scientific responsible:       Dr. Manuela Stroili

 

2.   Campania Region 

Legal responsible:              Dr. Teresa Armato    

Scientific responsible:       Dr. Vincenzo Montrone

 

3.    Gigi Ghirotti Committee

Legal responsible:                 Dr. Bruno Vespa

        Scientific responsible:           Dr. Vito Ferri

 

4.   Floriani Foundation

Legal responsible:              Dr. Loredana Carbone-Floriani

Scientific responsible:        Dr. Vittorio Ventafridda

 

5.   Lazio Region 

Legal responsible:              Dr. Vincenzo Maria Saraceni

Scientific responsible:         Dr. Antonella Battilomo

 

6.   Lombardia Region  

Legal responsible:             Dr. Renato Botti

Scientific responsible:        Dr. Furio Zucco

 

7.   Puglia Region  

Legal responsible:                Dr. Salvatore Mazzaracchio

        Scientific responsible:          Prof. Francesco Calamo Specchia

 

8.   Sardegna Region  

Legal responsible:             Dr. Pier Luigi Cuccuru

Scientific responsible:        Dr. Marco Rais

for further information please contact:

Dr. Elena Gianicolo

tel.  +39-0831/507338

email:  gianicolo@isbem.cnrsm.it
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